My sister’s son, Jackson, was born with MECP2 Duplication Syndrome. It is a form of Rett Syndrome that occurs almost exclusively in males. Jackson is 16 years old now and is unable to walk or talk; he cannot eat on his own; he is also prone to respiratory infections and suffers from several seizure disorders. There are only 1000 cases of this in the world. Half of the boys with this disorder will not live past the age of 25.

Please help me in supporting my sister and her efforts to give her son the best quality of life possible as they are getting closer to finding a cure for this rare disease.

For more information, I encourage you to check out the website for MECP2 Duplication Syndrome at mecp2duplication.com

Your prayers and support are greatly appreciated!
With heartfelt gratitude from our family. XO